This information is intended for anyone affected with FAP, either
directly or indirectly. Please share it with your family and with
anyone who wants to learn more about this rare precancerous genetic
disease. Although FAP may affect only 1 in 10,000 people, it is
considered a model for cancer prevention throughout the world. The
key to treatment for FAP is education, that is, learning about early
diagnosis and appropriate follow-up. The goal of this guide is to
help you improve your quality of life by taking an active role in
your own health care and that of your family.
What is FAP (Familial Adenomatous Polyposis)?
Familial means that it runs in families.
Each child of an affected parent has a 50% risk of inheriting
the disease gene.
Adenomatous is a type of mushroom-shaped
growth or polyp which may be precancerous.
Polyposis is a condition where 100
or more polyps can form in the large intestine.